How does AMR work?
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The AMR is a separate database containing information on individuals with mesothelioma. All new mesothelioma diagnosed cases in Australia are monitored by them from 1 July 2010. Information regarding asbestos exposure is also collected from individuals who have mesothelioma by telephone interviews and Postal Questionnaire.
Australia in the past was among the world's largest asbestos users and there are large amounts of asbestos contained in Australian buildings as well as other types of infrastructure. This has resulted in the country having one of the highest mesothelioma rates in the world and it has been estimated that it has not peaked yet. Additional research is necessary in order to better understand the precise relationship between mesothelioma and asbestos.
Safe Work Australia an Australian Government agency funds the AMR. The information that the AMR collects will assist the Australian Government with developing policies on how to deal best with asbestos still contained in Australia's environment and buildings with the goal of mesothelioma being reduced in the future.
If you happen to be a medical professional or mesothelioma patent and are asked to participate with the AMR we strongly encourage you to get involved. Your participation can help to prevent mesothelioma in the future.
Information is collected by the AMR on all new mesothelioma cases that have been diagnosed since July 2010 from a territory and state cancer registries to which mesothelioma notification is mandatory.
The Cancer Institute NSW manages the AMR and carries out its functions under a commercial fee-for-service agreement.
Mesothelioma Defined
Mesothelioma is a type of fatal cancer that usually occurs 20 to 30 years following a person being exposed to asbestos. Exposure to asbestos doesn't necessarily result in the individual developing the disease.
Questionnaire
Patients who have been diagnosed with mesothelioma and consent to participate in the AMR asbestos exposure assessment will be sent a questionnaire for recording their occupational and residential history and whether or not they have undertaken any activities outside of paid work that might have resulted in them being exposed to asbestos.
The patient's history is used for identifying the jobs or other personal circumstances that most likely resulted in them being exposed to asbestos. The information is used for asking patients specific questions to help researchers make estimates on their past asbestos exposure.
AMR Objectives include the following:
Accurately measure mesothelioma incidence in Australia so that changes can be monitored and groups that are most at risk can be identified in order to prevent future exposure.
Allow mesothelioma survival to be periodically assessed in order to ascertain whether changes in patient care have result in any measurable improvements for survival.
Document asbestos as well as other exposure experiences of individuals who have recently been diagnosed with mesothelioma as a type of surveillance for increasing or new exposure sources for asbestos as well as other carcinogens.
Provide a resource that offers research into the control and causes of mesothelioma.
Inform policies on how asbestos that is still present within our environment should be best dealt with.
More Information
Reports are published by the on the rates of new cases of mesothelioma and deaths in Australia in addition to information on patterns of asbestos exposure in mesothelioma patients.
Along with producing periodical reports and collecting data the AMS provides access to detailed unit record data and de-identified aggregate data to those conducting research investigations or the mesothelioma-related activities.
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